Alzheimer's Disease & Related Disorders

Chicago, IL · Founded 1985

Leading voluntary health organization dedicated to Alzheimer's care, support, and research

Primary audience
Dementia patients
Work area
Health services
Topic
Alzheimer's disease
Contact
Katherine Joanne Pike
Website Contact

About Organization

The organization advances research to end Alzheimer's and dementia while providing care and support to millions of affected families. Based in Chicago, IL, it operates with $443.9 million in annual revenue and employs 2,261 staff members. The organization has maintained consistent operations since its 1985 founding.

What They Focus On

Scientific Research

Funding discovery research to understand Alzheimer's disease mechanisms and develop effective treatments and cures

Care Support

Providing medical services, education, and family support for individuals affected by Alzheimer's and dementia

Public Awareness

Educating communities about disease prevention, early detection, and available resources for patients and caregivers

Financial Information

Form 990 data showing organizational financial health and growth.

Revenue (2023)

$443.9M

+0% vs 2023

Assets (2023)

$525.8M

+0% vs 2023

Year Revenue Expenses Assets Employees
2023 — — — —
2023 $443,925,786 $456,554,279 $525,774,994 2,261
2022 — — — —
2022 $412,425,302 $460,183,069 $512,971,086 2,360
2020 — — — —
2020 $404,526,641 $365,551,376 $497,643,896 2,405
2019 $403,087,006 $387,807,493 $410,346,682 2,689
2018 $389,665,878 $386,573,873 $377,644,348 2,620

Source: IRS Form 990 filings. All figures in USD.

How They Work

Learn more
  • 01

    Fund Research

    Invest in scientific discovery to understand disease mechanisms and develop treatments

  • 02

    Educate Communities

    Provide public education on early detection, risk reduction, and disease management

  • 03

    Support Families

    Deliver care consultation, support groups, and resources for caregivers and patients

  • 04

    Advance Policy

    Advocate for public policies that improve care access and research funding

Programs and Initiatives

Services and programs offered by Alzheimer's Disease & Related Disorders

Discovery Research

Funds scientific research to understand, treat, and ultimately cure Alzheimer's disease and related dementias

Medical Services

Provides clinical care coordination and medical guidance for individuals living with Alzheimer's and dementia

Public Education

Delivers community education programs and resources about Alzheimer's disease prevention and care strategies

Family Support

Offers counseling, support groups, and assistance to families caring for loved ones with dementia

Team & Leadership

Meet the people behind Alzheimer's Disease & Related Disorders.

KJ

Katherine Joanne Pike

President/CEO
Full-time
Compensation: $943,223
HJ

Harry Johns

Former Chief Executive Officer
Compensation: $898,987
MC

Maria Carrillo

Chief Science Officer
Full-time
Compensation: $891,671
DM

Donna McCullough - Chief Miss

& Field Ops Ofr (Thru 1/24); COO
Full-time
Compensation: $823,158
RE

Robert Egge

Chief Public Policy Officer
Full-time
Compensation: $812,210
RH

Richard Hovland

CFO (To 7/17/23); COO (Thru 1/24)
Full-time
Compensation: $721,117
CH

Carl Hill

Chief De&I Officer
Full-time
Compensation: $461,901
BP

Barbara Pryor

Chief Admin Officer (As Of 10/23)
Full-time
Compensation: $62,699
AD

Andrew Dahlkemper

Director (Thru 10/2023)
5 hrs/week
BH

Bret Hill

Director (As Of 10/2023)
5 hrs/week
CG

Chuck Garrett

Director (As Of 10/2023)
5 hrs/week
CM

Cynthia Moore-Hardy

Director (As Of 10/2023)
5 hrs/week
DH

David Hunter

Director (Thru 10/2023)
5 hrs/week
EK

Eileen Kamerick

Director (Thru 10/2023)
5 hrs/week
JJ

Joseph Joe Montminy

Director (Thru 10/2023)
5 hrs/week
JW

Julia Wallace

Director (Thru 10/2023)
5 hrs/week
RC

Rebecca Chopp

Director (As Of 10/2023)
5 hrs/week
RB

Rushern Baker

Director (As Of 10/2023)
5 hrs/week
RM

Ryan Mundy

Director (Thru 10/2023)
5 hrs/week
KC

Kenann Cassidy

East Area Leader
Full-time
Compensation: $580,979
EV

Eric Vanvlymen

Area Leader West
Full-time
Compensation: $447,632
AD

Anthony D'amato - Asst Secy

VP, Legal & General Counsel
Full-time
Compensation: $392,289
MH

Michelle Helton

VP, Financial Operations
Full-time
Compensation: $380,142
ML

Mark Leon

CFO & Asst. Treasurer
AT

Alex Tsao

Director
BB

Bruce Baude

Treasurer (Thru 10/2023); Director
BL

Bruce Lamb

Director
DG

David Gonzales

Director
DB

Dean Brenner

Treasurer (As Of 10/2023); Director
DV

Derek Van Amerongen

Director
DP

Don Plaus

Director
DG

Dozene Guishard

Director
ES

Elizabeth Shih

Director
GH

Geoff Heredia

Director
GW

George Walz

Director
IS

Irene Sudac

Director
JA

Joe Arciniega

Director
KJ

Karyne Jones

Director (Thru 10/2023); Vice Chair
ML

Mikaela Louie

Director
NW

Nancy Westcott

Director
NW

Nicole Walker

Director
TG

Tony Gonzales

Director
WG

W Gabriel De La Rosa

Director
WD

Wendy Drummond

Director
WT

William Thomas

Director

Milestones

1985

Organization Founded

1985

Established as national voluntary health organization for Alzheimer's disease

2018

Revenue Growth

2018

Annual revenue reached $389.7 million supporting expanded programs

2020

Staff Expansion

2020

Workforce grew to 2,405 employees to meet increasing service demand

2023

Record Operations

2023

Achieved $443.9 million revenue milestone with 2,261 staff members

Associated People

Board members, advisors, and key contributors

Board of Directors

ML
Mark Leon CFO & Asst. Treasurer (As Of 7/23) 60.00 hrs/week · $170,595
AT
Alex Tsao Director 5.00 hrs/week
BB
Bruce Baude Treasurer (Thru 10/2023); Director 10.00 hrs/week
BL
Bruce Lamb Director 5.00 hrs/week
DG
David Gonzales Director 5.00 hrs/week
DB
Dean Brenner Treasurer (As Of 10/2023); Director 10.00 hrs/week
DP
Debra Pierson Secretary 10.00 hrs/week
DV
Derek Van Amerongen Director 5.00 hrs/week
DP
Don Plaus Director 5.00 hrs/week
DG
Dozene Guishard Director 5.00 hrs/week
ES
Elizabeth Shih Director 5.00 hrs/week
GH
Geoff Heredia Director 5.00 hrs/week
GW
George Walz Director 5.00 hrs/week
IS
Irene Sudac Director 5.00 hrs/week
JA
Joe Arciniega Director 5.00 hrs/week
KJ
Karyne Jones Director (Thru 10/2023); Vice Chair 12.00 hrs/week
ML
Mikaela Louie Director 5.00 hrs/week
MJ
Minoo Javanmardian Vice Chair (Thru 10/23); Chair Elect 12.00 hrs/week
NW
Nancy Westcott Director 5.00 hrs/week
NW
Nicole Walker Director 5.00 hrs/week
SL
Sarah Lorance Chair 12.00 hrs/week
TG
Tony Gonzales Director 5.00 hrs/week
WG
W Gabriel De La Rosa Director 5.00 hrs/week
WD
Wendy Drummond Director 5.00 hrs/week
WT
William Thomas Director 5.00 hrs/week
ML
Mark Leon CFO & Asst. Treasurer
ML
Mark Leon CFO & Asst. Treasurer

Information compiled from IRS Form 990 and organizational materials.

Executive Compensation

Top compensated officers & key employees from IRS Form 990

Total Reported (2023)

$8.5M

Highest Paid

$1.0M

Katherine Joanne Pike

Compensated Officers

13

Name Title Base Other Total Hrs/Wk
Katherine Joanne Pike President/CEO $943,223 $73,624 $1,016,847 60
Maria Carrillo Chief Science Officer $891,671 $86,335 $978,006 60
Harry Johns Former Chief Executive Officer $898,987 $36,300 $935,287 —
Robert Egge Chief Public Policy Officer $812,210 $117,089 $929,299 60
Donna Mccullough - Chief Miss & Field OPS Ofr (Thru 1/24); COO $823,158 $94,668 $917,826 60
Richard Hovland CFO (To 7/17/23); COO (Thru 1/24) $721,117 $104,464 $825,581 60
Kenann Cassidy East Area Leader $580,979 $84,126 $665,105 60
Carl Hill Chief De&I Officer $461,901 $73,685 $535,586 60
Eric Vanvlymen Area Leader West $447,632 $75,091 $522,723 60
Michelle Helton VP, Financial Operations $380,142 $76,381 $456,523 60
Anthony D'Amato - ASST Secy VP, Legal & General Counsel $392,289 $50,233 $442,522 60
Mark Leon CFO & ASST. Treasurer (As Of 7/23) $170,595 $24,307 $194,902 60
Barbara Pryor Chief Admin Officer (As Of 10/23) $62,699 $10,013 $72,712 60

Source: IRS Form 990 filings. Compensation includes base and other reported compensation.

Partners & Funders

Grant funding relationships from IRS Form 990 filings

$21.4M Grants Received
$60.2M Grants Given
96 Organizations

Top Funders

46 total
FN
Fidelity Non-Profit Management
$7.5M
PC
PAYPAL Charitable Giving Fund
$2.5M
FF
Foundation For The Carolinas
$2.0M
GH
Greater Houston Community Foundation
$1.7M
GD
Gs Donor Advised Philanthropy Fund
$773K
AE
American Endowment Foundation
$754K
MS
Morgan Stanley Global Impact Funding Trust Inc. 4 grants
$555K
CC
Chc Creating Healthier Communities
$441K
TC
Tulsa Community Foundation
$392K
SV
Silicon Valley Community Foundation
$339K
+36 more funders

Top Grantees

50 total
WF
Wake Forest University Health Sciences WINSTONSALEM, NC
$10.2M
AI
Alzheimer's Impact Movement CHICAGO, IL
$10.1M
AC
American College Of Radiology RESTON, VA
$3.6M
WU
Washington University In Stlouis ST LOUIS, MO
$3.4M
UO
University Of Southern California LOS ANGELES, CA
$2.5M
TR
The Regents Of The University Of California San Francisco SAN FRANCISCO, CA
$2.5M
IU
Indiana University BLOOMINGTON, IN
$2.0M
MG
Massachusetts General Hospital BOSTON, MA
$1.6M
TR
The Regents Of The University Of California Irvine IRVINE, CA
$1.3M
BI
Broad Institute Inc. CAMBRIDGE, MA
$1.3M
+40 more grantees
Fidelity Non-Profit Management PAYPAL Charitable Giving Fund Foundation For The Carolinas Greater Houston Community Foundation Gs Donor Advised Philanthropy Fund American Endowment Foundation Morgan Stanley Global Impact Funding Trust Inc. Chc Creating Healthier Communities Tulsa Community Foundation Silicon Valley Community Foundation Community Foundation of Northern Nevada GivenGain Foundation USA The Ayco Charitable Foundation Enterprise Community Partners Inc. Point32Health Foundation Inc. St Louis Community Foundation Inc. Colorado Gives Foundation Community Foundation For Southeast Pledgeling Foundation Natl Christian Charitable Fdn Inc. Senior Connection Center Inc. The Indianapolis Foundation Inc David Moore Foundation The Community Foundation Inc. Mightycause Charitable Foundation Horizon Community Funds of Northern Methodist Healthcare Ministries of South Texas Inc Community Foundation For Greater Buffalo Network For Good Aarp Wake Forest University Health Sciences Alzheimer's Impact Movement American College Of Radiology Washington University In Stlouis University Of Southern California The Regents Of The University Of California San Francisco Indiana University Massachusetts General Hospital The Regents Of The University Of California Irvine Broad Institute Inc. The Board Of Trustees Of The Leland Stanford Junior University The Regents Of The University Of California San Diego Mayo Clinic Jacksonville Neurotherapia Inc. Icahn School Of Medicine At Mount Sinai C2N Diagnostics The University Of North Carolina At Chapel Hill Rush University Medical Center Vanderbilt University Medical Center Albert Einstein College Of Medicine Foundation For The National Institutes Of Health Beth Israel Deaconess Medical Center The Regents Of The University Of Michigan University Of Pittsburgh University Of Florida The Trustees Of Columbia University In The City Of New York New York University Grossman School Of Medicine Duke University School Of Medicine University Of Kentucky Research Foundation The J David Gladstone Institutes
Fidelity Non-Profit Management PAYPAL Charitable Giving Fund Foundation For The Carolinas Greater Houston Community Foundation Gs Donor Advised Philanthropy Fund American Endowment Foundation Morgan Stanley Global Impact Funding Trust Inc. Chc Creating Healthier Communities Tulsa Community Foundation Silicon Valley Community Foundation Community Foundation of Northern Nevada GivenGain Foundation USA The Ayco Charitable Foundation Enterprise Community Partners Inc. Point32Health Foundation Inc. St Louis Community Foundation Inc. Colorado Gives Foundation Community Foundation For Southeast Pledgeling Foundation Natl Christian Charitable Fdn Inc. Senior Connection Center Inc. The Indianapolis Foundation Inc David Moore Foundation The Community Foundation Inc. Mightycause Charitable Foundation Horizon Community Funds of Northern Methodist Healthcare Ministries of South Texas Inc Community Foundation For Greater Buffalo Network For Good Aarp Wake Forest University Health Sciences Alzheimer's Impact Movement American College Of Radiology Washington University In Stlouis University Of Southern California The Regents Of The University Of California San Francisco Indiana University Massachusetts General Hospital The Regents Of The University Of California Irvine Broad Institute Inc. The Board Of Trustees Of The Leland Stanford Junior University The Regents Of The University Of California San Diego Mayo Clinic Jacksonville Neurotherapia Inc. Icahn School Of Medicine At Mount Sinai C2N Diagnostics The University Of North Carolina At Chapel Hill Rush University Medical Center Vanderbilt University Medical Center Albert Einstein College Of Medicine Foundation For The National Institutes Of Health Beth Israel Deaconess Medical Center The Regents Of The University Of Michigan University Of Pittsburgh University Of Florida The Trustees Of Columbia University In The City Of New York New York University Grossman School Of Medicine Duke University School Of Medicine University Of Kentucky Research Foundation The J David Gladstone Institutes

Source: IRS Form 990 Schedule I filings. Amounts may span multiple tax years.

Related Organizations

3 affiliated entities reported on IRS Form 990 Schedule R

3

Tax-Exempt Affiliates

3
Alzheimer's Impact Movement (Aim)
Chicago, IL
Social Welfare
501(c) 501(C)(4)
Alzheimer's Association International
TORONTO, ONTARIO
Public Foundation
501(c) 501(C)(3)
Coalition Of Ny State Alz Assn Chaps Inc
Albany, NY
Public Charity
501(c) 501(C)(3)

Source: IRS Form 990, Schedule R (Related Organizations and Unrelated Partnerships)

Contact

Get in touch with Alzheimer's Disease & Related Disorders

Phone

(312) 335-8700

Social

Visit Website
225 N Michigan Ave 17th Floor Chicago, IL 606017633